JRC-ENCR Management Committee

ENCR Steering Committee 2021-2023

Elected members

Dr Volker ArndtCancer Registry Baden-WürttembergHeidelberg, Germany
Dr Francesco CuccaroCancer Registry of PugliaSection of Health Local Unit Barletta – Andria – Trani, Italy
Dr Alla EgorovaSamara Cancer RegistrySamara, Russian Federation
Dr Anna GavinN. Ireland Cancer RegistryN. Ireland
Dr Mats LambeRegional Cancer Registries, Sweden
Dr Maciej TrojanowskiGreater Poland Cancer RegistryPoland
Dr Otto VisserNetherlands Cancer RegistryUtrecht, Netherlands

Nominated members

Dr Freddie Bray
Representative of the International Agency for Research on Cancer (IARC) Section of Cancer InformationLyon, France
Dr Elizabeth van Eycken
Representative of the International Association of Cancer Registries (IACR)Belgium Cancer Registry Belgium 

Co-opted members

Dr Laetitia Daubisse-Marliac
Tarn Cancer Registry, France

Previous Steering Committees

EC Joint Research Centre

The Joint Research Centre (JRC) is the European Commission's science and knowledge service. Functioning as a Directorate-General of the Commission, the Centre supports a wide range of EU policies by providing evidence and technical know-how independent of all private or national interests.

The JRC Directorate F – Health, Consumer and Reference Materials, in close collaboration with the Directorate-General for Health and Food Safety (DG SANTE), is supporting the creation of a cancer information system to assess and monitor the burden of cancer in Europe.

The JRC has been hosting the ENCR secretariat since 2012, ensuring continued administrative functioning of the network. With the goal of enabling accurate comparisons of European cancer information data, the JRC supports the ENCR in the harmonisation of data and registration processes.

JRC-ENCR Management Committee

The JRC-ENCR Management Committee has been established in 2022 to coordinate the collaboration between the Joint Research Centre (JRC) of the European Commission and the European Network of Cancer Registries (ENCR)-affiliated members, aimed at further developing and maintaining the European Cancer Information System (ECIS) as the source to quantify cancer burden across Europe.

The JRC and the ENCR promote harmonisation of cancer registries' data, as the input source for the assessment of cancer burden in Europe. The JRC supports the ENCR in the harmonisation of data and registration processes to strengthen the basis for monitoring the cancer burden. Building on the ENCR-affiliated registry data and cooperation, the JRC has developed and maintains the ECIS web site, which provides statistical indicators on temporal and geographic cancer trends in European countries.

To support European-level coordination of the ENCR activities, the newly established JRC-ENCR Management Committee consists of members of the ENCR Steering Committee, plus two representatives from the JRC. Besides preparing and taking decisions on the JRC-ENCR activities regulated by the Collaboration Agreement between the JRC and the ENCR registries, the Committee decides on membership criteria, on the setting-up of workshops and working groups, and on applications for specific scientific projects and studies regarding protocol, data and authorship. The JRC-ENCR Management Committee establishes policies and adopts its own documents, supports and collaborates with the JRC for all the ECIS activities.

Decisions of the JRC-ENCR Management Committee are taken by consensus.