ENCR experts are available to carry out registry reviews through site visits. The fundamental purpose of the structured review is to evaluate a registry's performance, identify strengths and limitations of procedures and outputs, and provide a set of recommendations to the registry, taking into account available resources and other factors.
During the review process, the ENCR experts will discuss with the local experts the main activities relevant to cancer registration, including data collection, management, quality control, analysis and dissemination. This may be particularly useful for recently-established registries, or where transitions are underway, for example, where there are legal or organisational obstacles to registration. A comprehensive report will be delivered following the site visit.
Registries wishing to be reviewed should send a request to the ENCR Secretariat (firstname.lastname@example.org).
More details on the process will then be provided. The review team (usually two persons) will be selected by the ENCR Steering Committee and will spend 2-3 days in the registry, interviewing staff and reviewing relevant documents and procedures.
The review report will be prepared and upon approval of the ENCR Steering Committee, will be sent to the requesting registry. The report will contain a detailed description of the registration procedures, as shown in the example template report, based on the document ENCR Working Group on Structured Reviews of Cancer Registries, 2000. A brief questionnaire will be sent to the registry prior to the visit for background information.
The costs for the structured review, travel and per diem for the review team, will normally be the responsibility of the cancer registry.
Past Registry reviews
|Cancer registry||ENCR Review Team||Date of visit|
|Cancer Registry in Moldova||Dr. Nadya Dimitrova, Dr. Emanuele Crocetti||July 2016|
|Cancer Registry in Moldova||Dr. Nadya Dimitrova, Dr. Valentin Babaev||4-8 November 2013|
|Cancer Registry in Moldova, Chisinau, Moldova||Dr. Nadya Dimitrova||6-8 February 2012|
|North Rhine-Westphalia Epidemiological Cancer Registry, Germany||C. Carrigan, S. Siesling, A. Katalinic||25-27 January 2010|
|Regional Cancer Registry, Bremen, Germany||R. Black, V. Pompe-Kirn, E. Démaret||26-27 June 2003|
|National Cancer Registry, Cork, Ireland||I. Izarzugaza, E. Pukkala, E. Démaret||22-23 May 2003|
|Regional Cancer Registry, Kielce, Poland||C. Martínez, I. Plesko, E. Démaret||30-31 January 2003|
|Paediatric Cancer Registry, Budapest, Hungary||R. Otter, E. Steliarová-Foucher, E. Démaret||25-26 July 2002|
|Regional Cancer Registry, Groningen, the Netherlands (pilot)||D. Brewster, E. Pukkala,E. Démaret||11-12 June 2001|