The JRC and the ENCR organised the 2016 ENCR Scientific Meeting and General Assembly, from 5-7 October in Baveno, Italy. The purpose of this bienial meeting was for European cancer registries to share research findings, discuss cancer registration issues, exchange ideas and best practices, network, present epidemiological work based on cancer registry data and to meet with the ENCR Steering Committee.
Some 170 European Cancer Registry representatives as well as researchers, epidemiologists and clinicians all gathered together to attend this event. With 36 oral presentations, 50 posters and three high-level keynote speeches, this scientific exchange during this event superseded all expectations. Moreover, the JRC launched its newly developed software for data quality checks, the software is freely available to all registries and the training workshop was attended by about 50 participants. This comprehensively innovative software will enhance the harmonisation of cancer data. The exchange of best practices and the networking was unprecedented and this was a milestone for cancer registration in Europe.
Please find on this page all the documents collected during the 2016 ENCR Scientific Meeting and General Assembly. Presentations are available for download if permission has been granted by the authors.
- Booklet
- Detailed Programme
- Oral Presentations
- Poster Presentations and Best Poster Awards
- ENCR General Assembly minutes
Booklet
Please download here the booklet of the ENCR Scientific Meeting and General Assembly.
Detailed Programme
Please download here the detailed programme of the ENCR Scientific Meeting and General Assembly.
| WEDNESDAY, 5 OCTOBER 2016 | |||||
| Opening Ceremony Ciarán Nicholl (EC JRC), Alexander Katalinic (ENCR) |
| WEDNESDAY, 5 OCTOBER 2016 | |||||
| 1st Scientific Session - Cancer burden in Europe: incidence, mortality, survival and prevalence Moderators: Freddie Bray, Nadia Dimitrova and Manola Bettio |
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| Invited Lecture: Roberto Zanetti (International Association Cancer Registries) Future developments in cancer registration |
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| Survival from cancer in the North region of Portugal - Results from the first decade of the Millennium | Luis Antunes | ||||
| The burden of rare cancer among adults in Austria, 2000-2012 | Monika Hackl | ||||
| Rare cancers prevalence in Europe: the RARECAREnet project | Sandra Mallone | ||||
| Trends in incidence of childhood cancer in Switzerland, 1985-2014 | Matthias Schindler | ||||
| Time trends and spatial patterns in the mesothelioma incidence in Slovenia, 1961-2013 | Vesna Zadnik | ||||
| Ethnic differences in the incidence of cancer in Norway | Kirsti Vik Hjerkind | ||||
| Cancer incidence trends in Ukraine, 2002-2012 | Anton Ryzhov | ||||
| WEDNESDAY, 5 OCTOBER 2016 | |||||
| 2nd Scientific Session - Cancer registries and evaluation of cancer care (1) Moderators: Alexander Katalinic, Hans Storm and Giorgia Randi |
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| Breast cancer screening effectiveness in Portugal central region | Joana Bastos | ||||
| Measuring and reporting quality of care at the Belgian cancer registry: pivotal steps of an integrative quality system | Liesbet Van Eycken | ||||
| Indicators of long-term survival and cure of cancer | Luigino Dal Maso | ||||
| Monitoring care for female breast cancer patients in N. Ireland (NI) diagnosed 2012 (comparisons to 1996, 2001 and 2006) | Victoria Cairnduff | ||||
| How European cancer registries can contribute in the assessment of quality of care for cancer patients? | Luciana Neamtiu | ||||
| THURSDAY, 6 OCTOBER 2016 | |||||
| 3rd Scientific Session - Cancer registries and evaluation of cancer care (2) Moderators:Maria Dolores Chirlaque, Andrea Bordoni and Francesco Giusti |
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| Invited Lecture: Francesco de Lorenzo (Federation of Cancer Patients Organisations) Patient attitudes to monitoring and use of their cancer data in cancer research |
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| Patterns of care and cost profiles of cancer patients in Italy: the EPICOST study | Silvia Francisci | ||||
| The volume effect in paediatric oncology: a population based study | Gemma Gatta | ||||
| Delay in diagnosis and initiation of breast cancer treatment in Belgium | Liesbet Van Eycken | ||||
| The role of cancer registries in the evaluation of rare cancers care: the joint action on rare cancers | Annalisa Trama | ||||
| A trans-cultural European Deprivation Index for studying social determinants of cancer incidence and survival in Europe | Guy Launoy | ||||
| Faking it: Building a Simulacrum of non-identifiable modelled cancer data to support research | Cong Chen/ Sally Vernon |
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| THURSDAY, 6 OCTOBER 2016 | |||||
| 4th Scientific Session - Methods and measures of cancer registry data quality Moderators: Harry Comber, Carlotta Buzzoni and Roisin Rooney |
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| Primary brain and central nervous system tumours diagnosed in Girona (Spain) in 1994-2013 | Rafael Marcos-Gragera | ||||
| Completeness and validity of data in the Finnish Cancer Registry | Nea Malila | ||||
| Completeness of registration in the SCCR as estimated from data exchange with regional cancer registries in Switzerland | Shelagh M Redmond | ||||
| The impact of under-reporting of cases on the estimates of childhood cancer incidence and survival in Estonia | Keiu Paapsi | ||||
| Impact of socioeconomic status on breast cancer care patterns and survival: the Italian high resolution study results | Francesca Di Salvo | ||||
| Cancer incidence rates and Benford’s law: a useful liaison | Emanuele Crocetti | ||||
| THURSDAY, 6 OCTOBER 2016 | |||||
| 5th Scientific Session - Statistical methods and software tools Moderators: Ana Miranda, Freddie Bray and Lydia Voti |
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| Evidence-based toolkit of spatial epidemiology and analysis to enhance cancer surveillance | Dimitra Sifaki-Pistolla | ||||
| Shared mortality from liver cancer and type 2 diabetes mellitus in Puglia | Enzo Coviello | ||||
| The potential biases for interpreting patients’ net survival rate using cancer registries: a literature review | Ayako Okuyama | ||||
| CanStaging: a cancer staging tool facilitating tumour staging into the future–planned developments and enhancements | Colin Fox | ||||
| Comparing survival between Belgian haematopoietic stem cell transplant centres using a model based on pseudo values | Gilles Macq | ||||
| Official/main terms, related terms and conversion between different classifications–renewing the coding manual | Siri Larønningen | ||||
| THURSDAY, 6 OCTOBER 2016 | |||||
| ENCR General Assembly | |||||
| Welcome and report on ENCR-JRC activities from 2014-2016 | Alexander Katalinic | ||||
| Towards a European cancer information system: the Data Quality Checks software, the Portal development, the Data Visualization tool |
EC JRC/ ENCR Steering Committee |
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| Status of the 2015 ENCR-JRC Call for Data and ENCR-JRC project | |||||
| New data protection regulation and impact on cancer registries | |||||
| Results from the feedback survey to cancer registries | |||||
| General discussion | ENCR members | ||||
| Conclusions | Alexander Katalinic | ||||
| Giulio Barigelletti | Citizens’ initiative for epidemiological study of cancer disease in the VCO province |
| Adele Caldarella | Colorectal cancer incidence: an increasing trend under 50 years of age? |
| Victoria Cairnduff | Dying with cancer: perspectives of bereaved friends and relatives |
| Conor McKenna | Presentation, referral and management of oral cavity cancer in Northern Ireland–2013 |
| María José Sánchez | Geographical variation and modulation factors of lung cancer survival in Southern Spain |
| Conan Donnelly | A population level investigation of cancer clinical trials participation in a UK region |
| Marcela Guevara | Trends in patterns of care for breast cancer patients in Navarre, Spain. A population-based high resolution study |
| Alice Billot-Grasset | Improving survival of patients with hepatocellular carcinoma between 2005 and 2012 in the Finistere area, France |
| Alice Billot-Grasset | Impact of the decline in colorectal cancer participation screening |
| Victoria Cairnduff | Investigating the characteristics of breast cancer patients assigned to self-directed aftercare programme |
| Riccardo Capocaccia | The analysis of hospitals of referral and treatment in rare cancer patients |
| Alain Monnereau | Survival of hematological malignancies in France between 1989 and 2013: a population-based study from FRANCIM network |
| Kayo Nakata | Trends in survival of childhood cancer in Osaka, Japan, 1975-2009 |
| Walter Mazzucco | Thyroid cancer risk in the Palermo province: a spatial analysis |
| Pilar Gutiérrez | Step by step towards the implementation and quality of the Castile and Leon population-based Cancer Registry (CLPBCR) |
| Luminita Blaga | Software tool for increasing cancer data quality within Northwestern Regional Cancer Registry from Romania |
| Matthias Lorez | Evaluation of completeness of case ascertainment in Swiss cancer registration |
| Tiina Hakanen | The Finnish Cancer Registry description |
| Michael Rosskamp | Optimisation of malignant mesothelioma registration at the Belgian cancer registry |
| Ron Pritzkuleit | The small-area cancer atlas Schleswig-Holstein, Germany |
| Geert Silversmit | Cancer specific Potential Years of Life Lost (PYLL(75)) in Belgium |
| Paolo Contiero | Estimating cancer incidence from drug prescriptions, outpatient data, and hospital discharges |
| Anna Maria Nannavecchia | Cancer incidence estimation method: an Apulian experience |
| Alexandra Mayer | ROR-Sul Platform: an innovative tool for cancer research and clinical practice |
| Verena Pfeiffer | 40 Years of collaboration between the Swiss Childhood Cancer Registry (SCCR) and Swiss Paediatric Oncology Group (SPOG) |
| Charlene M. McShane | Establishing a population-based register of monoclonal gammopathy of undetermined significance in Northern Ireland |
| Ettore Bidoli | Cancer risk among patients with type 2 diabetes mellitus: a population-based cohort study in Northeastern Italy |
| Marta Solans | Net survival of Hodgkin lymphoma by stage and histological subtype in Girona (Spain): a population-based study 1985-2013 |
| Eileen Morgan | Physical after-effects reported by men undergoing prostate biopsy. Results from an all-Ireland study |
| Award | Authors | Title |
| 1 | Ina Schönfeld, Klaus Kraywinkel, Monika Hackl, Henrike Karim-Kos, Matthias Lorez, Volker Arndt | Comparison of thyroid cancer incidence rates in Austria, Switzerland and Germany. |
| 2 | Eileen Morgan, Frances J. Drummond, Catherine Coyle, Anna Gavin, Linda Sharp | Physical after-effects reported by men undergoing prostate biopsy. Results from an all-Ireland study. |
| 3 | Ron Pritzkuleit, Nora Eisemann, Alexander Katalinic | The small-area cancer atlas Schleswig-Holstein, Germany. |