Recommendations issued by ENCR

European cancer registries differ in various ways, including, for instance, their processing methods, definitions, or data sources. Common rules and definitions are prerequisite for making cancer registry data comparable, which is one of the main aims of the ENCR.
Expert working groups, consisting of three to four people, selected by the ENCR Steering Committee, examine potentially problematic topics and make recommendations for cancer registries.
Quality check harmonization ENCR, EUROCARE, IARC, CONCORD and selected experts
1st meeting: 2 July 2013 2nd meeting: 15 October 2013 3rd meeting: 4 June 2014
New recommendations on haematological cancers Dr Anna Gavin, Ireland Dr Rafael Marcos-Gragera, Spain Dr Richard Middleton, Ireland Dr Brian Rous, UK Dr Otto Visser, The Netherlands Dr Roberto Zanetti, Italy
26 Feb 2014
Data protection EUROCOURSE-ENCR
3 May 2011September 2012
Standard dataset
10 February 2005
Incidence DateDr Derek Pheby, UKDr Carmen Martínez, SpainDr Martine Roumagnac, FranceDr Leo Schouten, The Netherlands
Distributed in 1995Revised in 1997
Multiple PrimariesDr Paule-Marie Carli, FranceDr Isabel Izarzugaza, SpainDr Beata Koscianska, Poland
Distributed in 1995Revised in 2000Revised in 2004
Bladder TumoursDr Derek Pheby, UKDr Martine Sauvage, FranceDr Carmen Martínez, SpainDr Leo Schouten, The Netherlands
Distributed in 1995
Tumours of the Brain and Central Nervous SystemDr Derek Pheby, UK Dr M. Sant, Italy Dr J. Ironside, UK Prof. W.M. Molenaar, The Netherlands
Distributed in 1998
Leukaemias and LymphomasDr R. Otter, The Netherlands Dr A. Astudillo, Spain Professor P.M. Carli, France Dr A. Jack, UK Dr H. van Krieken, The Netherlands
Basis of DiagnosisDr J. Smith, UK Dr R. Frost, UK Dr L. Teppo, Finland Dr O. Visser, The Netherlands
Distributed in 1999
Non-Melanoma Skin CancersDr T. Davies, UK Mrs M. Page, UK Dr J.W. Coebergh, The Netherlands
Distributed in 2000
Method of Detection in Relation to ScreeningDr Leo Schouten, The Netherlands Dr Hannes Botha, UK Dr Eugenio Paci, Italy
Distributed in 2001
Confidentiality in Cancer registrationDr Hans Storm, Denmark Dr Eva Buiatti, Italy Dr Timo Hakulinen, Finland Dr Hartwig Ziegler, Germany
Distributed in 2002
Condensed TNM for Coding the Extent of DiseaseDr F. Berrino, Italy Dr C. Brown, UK Dr T. Möller, Sweden Dr L. Sobin, USA With: Dr J. Faivre, France
Distributed in 2002
Structured Registry ReviewDr David Brewster, UK Dr Willi Oberaigner, Austria Dr Eero Pukkala, Finland