Criteria for the ENCR membership
Population-based cancer registries represent the data source for evaluating the cancer burden at national and European level; moreover, their invaluable contribution is essential in assessing the impact of health policies and in comparing practices across regional and national boundaries.
Membership of the European Network of Cancer Registries (ENCR) ensures the systematic and standardised collection, utilisation and promotion of cancer data, as well as the provision of an active information-exchange infrastructure as a means to inform registries, within the network, of current activities and developments.
Cancer registries are eligible for FULL ENCR Membership provided that they:
• are population-based (including site or age-specific registries). Population based cancer registries are defined as registries that collect data on all new cases of cancer occurring in a specified population in a defined geographical area;
• currently operate in countries within the UN geographical definition of Europe1, plus Cyprus;
• have completed the ENCR questionnaire within the last 5 years (e.g. the membership questionnaire, or the 2015 ENCR-JRC Call for Data Questionnaire), and update the information on request;
FULL ENCR members benefit from the following:
• access to the ENCR-JRC Portal for a unique data submission to several different European studies;
• registry data may be included, and displayed, on the European Cancer Observatory;
• right to propose candidates, from the registry, as ENCR representatives on the Steering Committee, during the elections;
• right to elect the ENCR Steering Committee members;
• inclusion on the ENCR mailing list, which will be kept updated with news from the Network's members and activities;
• invitation to participate in ENCR activities (meetings, collaborative projects, surveys);
• invitation to participate in ENCR training events and, possibly, to request assistance from experts within the Network to enhance capacity at local level;
• opportunity to co-author papers, using European cancer registry data.
Non-population-based registries, networks of registries, cancer institutes and entities involved in cancer research, and organisations supporting cancer registration or cancer research, can apply for Associate Membership. This type of membership can include entities from countries belonging to the WHO European region2 (Europe according to the UN definition plus Turkey, Israel, Caucasus and Central Asia). Other organisations or entities, not directly involved in cancer registration or research, such as cancer patients' organisations, can be considered for Associate Membership.
ASSOCIATE ENCR members benefit from the following:
• inclusion on the ENCR mailing list, to be kept updated with news from the Network's members and activities;
• possibility of participating in ENCR activities (meetings, collaborative projects, surveys);
• possibility of participating in ENCR training events and, possibly, to request assistance from experts, within the Network, to enhance capacity at local level.
• opportunity to co-author papers, using European cancer registry data