Marked differences in practice exist between cancer registries, for example, with respect to data sources, definitions and processing methods.To make cancer registry data comparable, which is one of the main aims of the Network, it is important that common rules and definitions are used.

Working Groups have been established to examine specific topics, identified as potentially problematic. These expert working groups are constituted of 3-4 people, selected by the ENCR Steering Committee. Their task is to study the problem and make recommendations for the cancer registries.

The following topics and the corresponding recommendations have already been addressed:

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Topics	Authors	PDF link	Date
Quality check harmonisation	ENCR, EUROCARE, IARC, CONCORD and selected experts		1st meeting: 2 July 2013 2nd meeting: 15 October 2013 3rd meeting: 4 June 2014
New recommendations on haematological cancers	ENCR Haematology Working Group: Dr Anna Gavin, Ireland Dr Rafael Marcos-Gragera, Spain Dr Richard Middleton, Ireland Dr Brian Rous, UK Dr Otto Visser, The Netherlands Dr Roberto Zanetti, Italy		26 Feb 2014
Data protection	EUROCOURSE-ENCR		3 May 2011 September 2012
Standard dataset			10 February 2005
Incidence Date	Dr Derek Pheby, UK Dr Carmen Martínez, Spain Dr Martine Roumagnac, France Dr Leo Schouten, The Netherlands		Distributed in 1995 Revised in 1997
Multiple Primaries	from ENCR: Dr Paule-Marie Carli, France Dr Isabel Izarzugaza, Spain Dr Beata Koscianska, Poland		Distributed in 1995 Revised in 2000 Revised in 2004
Bladder Tumours	Dr Derek Pheby, UK Dr Martine Sauvage, France Dr Carmen Martínez, Spain Dr Leo Schouten, The Netherlands		Distributed in 1995
Tumours of the Brain and Central Nervous System	Dr Derek Pheby, UK Dr M. Sant, Italy Dr J. Ironside, UK Prof. W.M. Molenaar, The Netherlands		Distributed in 1998
Leukaemias and Lymphomas	Dr R. Otter, The Netherlands Dr A. Astudillo, Spain Professor P.M. Carli, France Dr A. Jack, UK Dr H. van Krieken, The Netherlands
Basis of Diagnosis	Dr J. Smith, UK Dr R. Frost, UK Dr L. Teppo, Finland Dr O. Visser, The Netherlands		Distributed in 1999
Non-Melanoma Skin Cancers	Dr T. Davies, UK Mrs M. Page, UK Dr J.W. Coebergh, The Netherlands		Distributed in 2000
Method of Detection in Relation to Screening	Dr Leo Schouten, The Netherlands Dr Hannes Botha, UK Dr Eugenio Paci, Italy		Distributed in 2001
Confidentiality in Cancer registration	Dr Hans Storm, Denmark Dr Eva Buiatti, Italy Dr Timo Hakulinen, Finland Dr Hartwig Ziegler, Germany		Distributed in 2002
Condensed TNM for Coding the Extent of Disease	Dr F. Berrino, Italy Dr C. Brown, UK Dr T. Möller, Sweden Dr L. Sobin, USA With: Dr J. Faivre, France		Distributed in 2002
Structured Registry Review	Dr David Brewster, UK Dr Willi Oberaigner, Austria Dr Eero Pukkala, Finland