Recommendations issued by ENCR

Marked differences in practice exist between cancer registries, for example, with respect to data sources, definitions and processing methods.To make cancer registry data comparable, which is one of the main aims of the Network, it is important that common rules and definitions are used.

Working Groups have been established to examine specific topics, identified as potentially problematic. These expert working groups are constituted of 3-4 people, selected by the ENCR Steering Committee. Their task is to study the problem and make recommendations for the cancer registries.


The following topics and the corresponding recommendations have already been addressed:

Select the language of your choice by clicking on the corresponding flag

Topics Authors PDF link Date
Quality check harmonisation ENCR, EUROCARE, IARC, CONCORD and selected experts



1st meeting: 2 July 2013

2nd meeting: 15 October 2013

3rd meeting: 4 June 2014

New recommendations on haematological cancers ENCR Haematology Working Group:
Dr Anna Gavin, Ireland
Dr Rafael Marcos-Gragera, Spain
Dr Richard Middleton, Ireland
Dr Brian Rous, UK
Dr Otto Visser, The Netherlands
Dr Roberto Zanetti, Italy

26 Feb 2014

Data protection EUROCOURSE-ENCR


3 May 2011

September 2012

Standard dataset   engflag 10 February 2005
Incidence Date Dr Derek Pheby, UK
Dr Carmen Martínez, Spain
Dr Martine Roumagnac, France
Dr Leo Schouten, The Netherlands
engflagfrenflaggerflagspanflag Distributed in 1995
Revised in 1997
Multiple Primaries from ENCR:
Dr Paule-Marie Carli, France
Dr Isabel Izarzugaza, Spain
Dr Beata Koscianska, Poland
engflag Distributed in 1995
Revised in 2000
Revised in 2004
Bladder Tumours Dr Derek Pheby, UK
Dr Martine Sauvage, France
Dr Carmen Martínez, Spain
Dr Leo Schouten, The Netherlands
engflag frenflag
Distributed in 1995
Tumours of the Brain and Central Nervous System Dr Derek Pheby, UK
Dr M. Sant, Italy
Dr J. Ironside, UK
Prof. W.M. Molenaar, The Netherlands
engflag Distributed in 1998
Leukaemias and Lymphomas Dr R. Otter, The Netherlands
Dr A. Astudillo, Spain
Professor P.M. Carli, France
Dr A. Jack, UK
Dr H. van Krieken, The Netherlands
Basis of Diagnosis Dr J. Smith, UK
Dr R. Frost, UK
Dr L. Teppo, Finland
Dr O. Visser, The Netherlands
engflag Distributed in 1999
Non-Melanoma Skin Cancers Dr T. Davies, UK
Mrs M. Page, UK
Dr J.W. Coebergh, The Netherlands
engflag Distributed in 2000
Method of Detection in Relation to Screening Dr Leo Schouten, The Netherlands
Dr Hannes Botha, UK
Dr Eugenio Paci, Italy
engflag Distributed in 2001
Confidentiality in Cancer registration Dr Hans Storm, Denmark
Dr Eva Buiatti, Italy
Dr Timo Hakulinen, Finland
Dr Hartwig Ziegler, Germany
engflagfrenflag Distributed in 2002
Condensed TNM for Coding the Extent of Disease Dr F. Berrino, Italy
Dr C. Brown, UK
Dr T. Möller, Sweden
Dr L. Sobin, USA
With: Dr J. Faivre, France
engflagfrenflag Distributed in 2002
Structured Registry Review Dr David Brewster, UK
Dr Willi Oberaigner, Austria
Dr Eero Pukkala, Finland